Questions to ask at your first cardiology visit after ECMO or cardiac arrest

Healing and what to watch for

• What should the places where the tubes went in look like as they keep healing, and what would be a reason to call before the next visit?
• Are the scars permanent, and is there anything about them beyond how they look that I should know?
• Which changes between now and the next visit should I call about, and who do I call?

Energy, strength and getting active

• What is a realistic pace for my energy to come back? Not a promise, just so I know what normal sounds like at this stage.
• My muscles feel much weaker than before. Is that expected, and should I see a physical therapist?
• What level of activity is right for me right now, and how do I know when to do more?
• Is cardiac rehab right for me, and how do I get started?
• When can I go back to driving, work and exercise?

Memory, mood and sleep

• I have gaps in my memory from the time I was sedated. Is that expected, and does it change anything about how you look after me now?
• I feel anxious or low since I came home. What support is there, and who can I talk to?
• Sleep has been hard. What can I try, and when should I tell you more?

The plan from here

• Which tests or follow-up visits come next, and when?
• Which of my medicines are for the long term, and which will change? Can you explain what each one is for?
• Is there anything that now needs to be checked regularly, and by whom?
• What should my family know, and what should they do if something worries them?

If you are the family member in the room

• What did you see at home that scared you, and have you told the care team?
• What can I help with, and what should I leave to them?
• Where can I get support for myself?

Your own questions